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Wow, I am sorry to see so many of our members do have chronic pain problems.
My husband has constant pain due to a fractured back and other bone disorders that have caused him to be very uncomfortable for the last 20 years or so. So with the two of us creaking around now, it’s pretty sad, let me tell you.I don’t look forward to being summarily dismissed by my doc when I go see him Monday and have him pooh-pooh my concerns, but I see this attitude quite a bit with my hubby, who has to see VA doctors and none of them believe he’s hurting because, as they put it, “You look damn good…”
Yeah, well since pain is one of those internal things that doesn’t show except in a grimace or a stumble, that means it’s not a real problem…like mental illness too, right? Bullpuckey.
It’s the old, “it if doesn’t leave a scar, then we guess it isn’t thar” mentality. I am sorry to hear you are dealing with such things, Cassi.Yeah, there’s no ‘definitive” test for this ailment. That’s the thick and thin of it. Sorry to hear your sis is also suffering, Jerz.
Rachel, chiropractic is beginning to loom closer for me too. I have always thought it was quackery, but my son’s had some work done and we’ve known the guy whose practice it is for some time. Odd, but my boy does seem to feel better for it. I guess I just feel kinda creeped out by someone messing with my spine… like I don’t mess with it enough as it is. lol….
Okay, enough of my complaining. When it comes to how to deal with it, unfortunately for quite some time I went the prescription medication route. I found that I was building a resistance, so I stopped. It was not a pleasant few weeks. Don’t really want to have to go back to that.
My stepmom and my birthdad went a few rounds with doctors when she developed severe back pain from a number of injuries and the doctors she saw also went with treating the symptoms and not the cause. My dad found this infuriating.
For some of us, there is no treating the cause though, and we are stuck with symptomatic relief. (Hubby should have had surgery years ago…now it is too late for such measures.)
I have only barely researched FMS and find that attempts to give the patient better quality of life is the usual route of highly addictive painkillers (that eventually don’t work anymore and leave nasty side effects) or antidepressants, and also there’s the token few who find some herbal remedies that give a bit of relief. I guess it depends on the severity of your pain/fatigue and what you are willing to take to combat it and at least be able to live your life reasonably well. Function may mean you have to give up relief and sometimes relief means you can’t be functional.Sooo…barring what I’ve already tried…I am thinking of getting into some soft stretching, things like Tai Chi (too old and inflexible for yoga) and my doc wanted me to try acupuncture for my lymphedema, but the idea of someone sticking even tiny pins into me all over is too weird. Can’t even think of it. >.<
I do believe there is a lot to the idea of a general energy about the body that once it is disrupted all sorts of things will cascade wrongly. I am not sure I can wait for the time it will take for any of these remedies to alleviate my discomfort. Having survived cancer, my golden years are not guaranteed me. And I find that the older I get the less tolerable even mild pain begins to become for me. Sleeping is the only time I don’t consciously hurt, and if the pain bleeds through I don’t sleep. I often wake terribly stiff and sore and wishing I could just go back to sleep. If I don’t get moving quickly, no matter how it hurts, the pain will get worse. I don’t want to even get started with the mental and digestive symptoms I have, we’ll be here for hours….So for now it’s just OTC meds and lots of heating pads/creams and as little irritation of my already hurting body as possible. If I’m lucky, this is not what I have and I’ll find my system working the pain out on it’s own eventually…but I don’t feel optimistic about this point of view.
So, if anyone has any other good ideas, I am all ears! ^_^
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lolz…*blush* I perhaps shared a bit much. Didn’t mean to come off as sounding like such a downer. Apologies.
Easy bruising? Oh dear. Yes, I have this. It’s getting ridiculously constant. I was thinking I had the beginnings of leukemia or something, as I recall that was usually a first sign of this. And that was about as far as I would let my mind go with that one.
And there was another user here, livingonfaith, she said her mum has FMS and that a trip to the grocery store is like a 10 K marathon for her. The more I hear the symptoms from patient to patient, the more familiar it sounds. lolz…Oh I hate needles too. Yikes. It took me forever to get used to being stuck (I had a portacatheter surgically inserted in my collarbone area so I could avoid IV’s in my arm each week, but it was still creepy!) for my chemo and to this day I dread my quarterly checkups because I hate to deal with getting poked in my hand, the only place left they can draw blood from now. >_< I just cannot get past the idea of acupuncture. Lots of people swear by it, I just can't bring myself to do it. *shudders*
I’ve only recently heard of cupping. I’ll have to look that up. Though I don’t think I like the idea of the bruises much… 0_o
As far as Tai Chi goes, I don’t know if it’s the movements or the music I like better. I can feel wonderful just putting in a CD and sitting quiet for 30 minutes at a time as long as it’s the kind of music you’d listen to during Tai Chi or other martial arts type exercises.
But then of course, one must turn off the CD and get back to work…lol. That takes effort. *nods*Tea. Mmmm.
I have found that I’m losing my taste for coffee, which apparently does an FMS patient no good. My current favorite is earl grey, hot…just like Captain Picard. ^_^ Double bergamot if I can get it. Every once in awhile, My husband can lift me just right and pop my back and I find the pain lessens. But this has not worked lately. And the pain has changed…more of a burning kind that goes mostly through my joints. Then the back just seems to reflect it. I do wish our hot springs were closer, I could really go for a long soak! I might have to rent a room there! ^_^ The next house I have must include a jacuzzi!
Thank you for the good wishes for Monday.
All the medical treatments in the world can’t beat having the support of people you know and love to listen and reach out even a virtual hand. I find sometimes having someone to talk to is the best medicine. I always ask for bb vibes before any of us (human or not) goes to the doctor, because these vibes here are the best! 
Hope you feel better too! ((((((((((((((((((((((((((Cassi)))))))))))))))))))))))))))
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Some Chiropractors operate very differently these days to the traditional “back cracking”. I saw one years ago and members of my family still see him as they’ve had good results. Especially Dad, who you wouldn’t pick as someone who’d go to an alternative practitioner. This chiro is quite wholistic in his work. He uses kinesiology to diagnose what might be contributing to your ailment. It could be related to diet, allergy, emotional upset, organ function or skeletal structure. He also uses a tool to deliver pressure to spots on the spine of elsewhere. It’s spring loaded and does not hurt at all. I suppose it is accupressure.
I’ve also heard good things about Osteopathy for chronic type conditions. They use many of the techniques that modern chiropractics and physiotherapy use now.
If I hear of a good one where I live, I think I’d like to give osteo a try. Problem with any treatments is the ongoing appts and cost. I found in the past I’d have to cancel an appt for some reason or another then found it took ages to get back to going.
MM, your mention of that acute pain in the chat thread and digestion here is ringing bells about gall bladder… I don’t know how they go about checking that out. Since your going to the Doc soon maybe….
Heheh, Am I being subtle?C&C, my sister used to take Astra-forte. Have you heard of that? It’s awful tasting but this and another similar product I’ve seen recommended numerous times. My friend who is super-fit went through a period when she was having low energy and her doctor got her onto a tonic that had the same herb – astragalus.
Edit to add: Something very important. {{{(((Vibes!)))}}}
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I am going to read up on cupping- sounds interesting. I am on prescription pain meds, muscle relaxers, etc. It gets so frustrating with going thru physical therapy, chiro, etc- that all these things really start to add up and often only provide temporary relief. So you get to be in pain and broke.
I am currently filing for disability and all the paperwork is such a pain- but at this point I don’t have much choice. -
I believe I’m in a similar position but not as severe as what I’ve heard! I’ve had sciatica down my right side for the last month and it’s very uncomfortable for me to sit for long periods of time. I’ve actually been off work for the last month with the pain and have been on strong pain pills since. It also kills me to lie down, making sleeping a nightmare.
In my case exercise has really helped. I work out every day and I really feel the difference. However if the pain continues for the next week or so, I’ll have to go to hospital and possibly surgery. Which is mega lame.
I feel your pain
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Hi Emmie!
That sounds like my hubby. He’s had a fractured lumbar spine for almost 22 years and he also has a bad bone condition that makes him very uncomfortable all the time. I don’t think he’s gotten a straight eight since he broke himself. Sleep is so precious when one is in pain, so anything that disturbs that is of course very frustrating. I threw my neck out just before bed last night. All I did was rub it because the muscles were hurting and SNAP! *ugh!* It was almost impossible to sleep and when I woke up it was still out. It took quite a few odd positions and a few hours to get it to snap back into place, but now my shoulders are askew so…if it’s not one thing it’s another. >.<
Well, I went to my doctor’s appointment this week and I didn’t get any helpful news. For the most part my doc says my xrays and bloodwork look good, but there was talk of a bone scan for a diagnosis on my pain. This means he’s starting to think along the lines of bone mets. I think I would rather he’d said I had fibro. ~_~ Although I think that metastases would be much more painful than what I’m experiencing and I’d be seeing other symptoms.
I do recall my gynecologist told me at my yearly a few months back that it sounded like I’m getting osteoporosis, so I’ll have to decide when my cancer screening bloodwork comes back next week whether I want to sink two grand into a CAT scan, (it would just be to ease my mind so I don’t worry-since my oncologist also didn’t really think I’m out of remission) which is not a fun test as I’m allergic to the contrast.
And if it were mets there’s only so much you can do about it anyway. I’d be back on chemo and radiation. So I’m just going to err on the positive side. ^_^Still, it would’ve been nice if he could’ve done something more for my discomfort. My stomach is getting really tired of aspirin.
At least I am not going back on adjuvant therapy for now. As far as that’s concerned he said we’ll see how I am in two months and then go from there.
He says I’m one of the offices’ ‘old timers’…huh? 0_o I don’t know if that was a backhanded compliment or what…lol.The big shock was to find out that one of the doctors at the practice had passed away suddenly a few weeks ago. 0_o Heart attack. This is such a small ‘town’ that I am surprised I didn’t hear about it sooner. It was quite a shock. So all in all a very confusing day.
And OH…even though it’s a controversial approach I have to say, VITAMINS! The more natural you can get the better, but I haven’t taken any for a few months and I just began another regimen of dailies and it’s really helped my energy level. I still hurt, but if I can keep moving (like Emmie said) I can bear with it at least. B vitamins mostly, and calcium if you have bone pain. Really helps.
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