I hope they find something to give you relief. Sending you luck and vibes.

Good luck. Hopefully the doctor will listen to you, I dislike when doctors ignore the patient and think it is all in their heads – my brother had gallstones and the doctor told him it was just caffeine withdrawal. o.O Vibes to you for quick relief.

Good luck! I’ve been in your shoes (though not with such a serious issue) and it can be really stressful to see a new doctor and wonder if they’ll just be dismissive. I hope your new doctor is a good one! If not, just tell yourself that you’ll visit another until you find one who you click with.

Ugh! I’m so sorry you’re having to go through all this, Abby. Sometimes just having an answer, even if it isn’t one you particularly want, is a huge help. As is knowing that the doctor actually listened to and heard your concerns. Here’s hoping for a good appointment and a happy ending.

Good luck!! I hope they figure out something.

Lyme disease. I have it and was misdiagnosed for 17 YEARS with a myriad of other issues – to name a few: narcolepsy, depression, thyroid issues, major anxiety, delayed sleep phase disorder, bi-polar disorder, chronic fatigue, and chronic migraines.

I strongly urge you to do a little research on lyme and find a Lyme Literate Medical Doctor. It is a very, very complex disease – much different than just 30 days of doxycycline, and the standard Western Blot test is terrifyingly inaccurate. A LLMD will be able to help you, or steer you in the right direction if you don’t actually have lyme.

Send me a PM if you have any questions or would like to look at a few websites I was finally diagnosed 19 months ago and have been undergoing treatment since then.

Good luck at your appointment!! Hang in there and take a deep breath, and remember take it one step or day at a time

Best wishes for a good doctor/appointment! Hope you can finally find some relief .

Good luck abbygirl. I feel this eery feeling of irony right now because I see a rheumatologist friday and they’re concerned I have lupus. My mother has it. And my symptoms have gotten worse since my last knee surgery. And my family is like yours with a mirage of auto-immune diseases. Aunt has fibromalysia. Cousins have hashimotos (I do too). My grandma has a couple rare ones that I cannot spell. I hope you get some answers. Its sad but most of these go un-diagnosed for a long time. My mom thinks she’s had lupus since she was 17 but it wasn’t until she was 40 that she got diagnosed. I went a year (maybe longer) before they found out I had hashimotos. But let’s think optimistically that if they can’t give you answers tomorrow, they are the type of doctor who will keep trying to figure it out. I’ll be sending vibes your way!

It’s good to have a diagnosis. I know of quite a few people who have this and I’m not totally versed in it other than it’s very painful. I hope you can now get some treatment to help you. Vibes.

I was wondering if you had Fibromyalgia. My Mom has it and had the same symptoms you have. Glade you found out what was wrong after all this time!

I don’t mean to pull up this thread, but I have a question. How did they finally diagnose you with Fibromyalgia? I ask because I keep having all these weird symptoms.
Aches in my shoulders, arms, hips, and thighs
Pain that shoots down either side of my neck
Knee pain
Headaches
Muscle spasms in ribs, arms, legs, feet
Numbness/tingling in hands
Sleep disturbances
Fatigue
Depression
Memory and concentration issues
Digestive issues

Not everything occurs all at once and some things sort of come and go.

The only thing I don’t seem to have is this pain with pressure at certain points of the body. I read that that was a classic symptom. The skin on my face and my rear are very sensitive though. You can’t tap me on my cheek, for example, because it hurts.

Anyway, I was just curious about your symptoms. You said swollen joints, but I don’t have that. I’m getting tired of the doctor telling me I’m dehydrated. So I was hoping to have something to compare to.

I forgot to mention, I have the tooth grinding/jaw popping problem too.

No, I haven’t. Like I said, the doctor keeps telling me I’m dehydrated and to drink more water. I have to see the doctor at school because I lost my health insurance this semester along with my job. I don’t know if they would be able to refer me or not.

Okay, I’ll look into that. The biggest problem will be getting the doctor to listen to me. I might just have to wait until I have health insurance again if there is nothing they can do. Thanks for the input, I will look up remedies like you said. Sorry for hijacking your thread. I’m glad you finally got a diagnosis.